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ASD Post Diagnostic Information

Useful resources and support services for children and young people

Please be aware that the information in this document is subject to change.

For the most up to date information, please see specific websites.

Local and national services

Service

Contact Details

Information

About With Friends

Website: www.AboutWithFriends.co.uk/

E-mail: info@AboutWithFriends.co.uk

Phone 01263 515230

 

Offers a range of activities and respite opportunities for young people aged 9 years and above living with disabilities in Norfolk.

Access Unlimited

Website: www.access-unlimited.co.uk/

Email: info@activities-unlimited.co.uk

Phone: 01473 260026

Activities Unlimited provides short breaks and leisure activities to disabled children aged 0-25 in Suffolk.

Autism and ADHD

Website: www.autismandadhd.org

Email: info@autismandadhd.org

Phone: 07915908432 

Offers support to individuals and families who live & work with Autism and ADHD.

AFASIC

Voice for Life

Website: www.afasic.org.uk

Helpline: 0300 666 9410

Provides information and training for parents and professionals and produces a range of publications.

Asperger East Anglia

Website: www.asperger.org.uk/

E-mail: info@asperger.org.uk

Phone: 01603 620500

 

 

Offers personal, friendly assistance for everyone with Asperger syndrome and their carers by providing a comprehensive and integrated service.

The Association for Child and Adolescent Mental Health

Website: www.acamh.org

 

Shares information & best practice across the UK through a network of branches.

Autism Anglia

 

 

Website: www.autism-anglia.org.uk

Phone: 01206 577678

Provides care and support to autistic children, adults, and their families in East Anglia.

Autism Education Trust

Website: www.autismeducationtrust.org.uk

Email: info@autismeducationtrust.org.uk

Phone: 0207 903 3650

 

Improves the education of autistic children and young people; enables individuals to reach their potential and engage in society; supports and informs education professionals.

ASD Friendly

Website: www.ASDfriendly.org

Parent run advice and support forum online.

Autism Spectrum Database UK

Website: www.autistica.org.uk/asd-uk

 

Autism Spectrum Database UK (ASD-UK) powers autism research in the UK. All families of children on the autism spectrum can join the national database to take part in research.

Autism Independent UK (SFTAH)

Website: www.autismuk.com

Email : autism@autismuk.com

Phone: 01536 523274

Increases awareness of Autism

& improves the quality of life for persons with Autism.

Avenues

Website: www.avenuesgroup.org.uk

Email: info@avenuesgroup.org.uk

Phone: 0300 323 0405

 

 

Works with people who are disabled, autistic or have complex support needs, helping them to enjoy fulfilling lives in the community.

Break

Website:  www.break-charity.org/charity/

 

Give vulnerable children, young people and families the time, support, and care they need to achieve their full potential.

Carers Trust

 

Website: www.carers.org

Email: info@carers.org

Phone: 0300 772 9600

Offers specialist services for carers of people of all ages and conditions and a range of individually tailored support and group activities.

Child Feeding Guide

Website: www.childfeedingguide.co.uk

Email: ChildFeeding@lboro.ac.uk

Phone: 01509 228160

Provides real strategies and tools to tackle fussy eating and create happy mealtimes.

DIAL

 

 

Website: www.dial-greatyarmouth.org.uk

Email: info@dial-greatyarmouth.org.uk

Phone: 01493 856900

 

 

Improves the quality of life for people in the Borough of Great Yarmouth and surrounding areas by providing financial and personal advice and guidance.

Disability Advice North East Suffolk

Website: www.lowestoftdial.co.uk

Email: info@danesonline.co.uk

Phone: 01502 511333

Provides information, advice, advocacy and representation service for anyone in the North East Suffolk area with a disability and/or long term health condition, their family and carers.

Dimensions

Website: www.dimensions-uk.org

Phone: 0300 303 9001

 

Supports people with learning disabilities and autism to live as active citizens, playing their part in our communities.

Early Help (Norfolk)

 

 

Website: www.norfolk.gov.uk/children-and-families/early-help 

 

 

Focuses on working with children, young people and their families to offer the right support around behaviour, parenting and additional needs in Norfolk.

Early Help (Suffolk)

Website: www.communitydirectory.norfolk.gov.uk/Services/4147/Early-Help-Team-Lowe

Phone: 01502 674747

Provides a range of early intervention services available for children and young people aged 0-19 and their families in Suffolk.

Family Action

 

 

 

Website: www.family-action.org.uk

Email: gorleston@family-action.org.uk

Phone: 01493 650220

 

Referral by a professional is currently needed

 

Offers support and advice to manage issues such as school, sleep, food and friendships. They also offer parenting programmes and support groups.

Family Lives

Website: www.familylives.org.uk

Email: askus@familylives.org.uk

Phone: 0808 800 2222

Provides targeted early intervention and crisis support to families who are struggling.

Family Voice

 

Website: www.familyvoice.org.uk

Phone: 07950 302937

 

Aims to improve services for children and young people with SEN/disabilities in Norfolk by ensuring that families’ voices are heard by planners and decision-makers.

NANSA Teens

Website: www.nansa.org.uk

Email: enquiries@nansa.org.uk   

Phone: 01603 414109

 

NANSA offer services for children young people and families who suffer with a disability, which includes SENSE Therapy and Sleep Services. 

The National Autistic Society

Website: www.autism.org.uk
Email: nas@nas.org.uk

Helpline: 0207 833 2299

 

 

Champions the rights and interests of all people with autism and aims to provide individuals with autism and their families with help, support and services that can make a positive difference to their lives.

Norfolk County Council

Website: www.norfolk.gov.uk/send

 

Information and support for anyone in the life of a child/young person age 0-25 who has a special educational need and/or disability (SEND) in Norfolk.

Norfolk SEND Partnership

Website: www.norfolksendpartnershipiass.org.uk

Email: sendpartnership.iass@norfolk.gov.uk

Phone: 01603 704070

Free and impartial information, advice and support about special educational needs & disabilities (SEND) for children, young people, parents and carers in Norfolk.

Norwich FC Community Sports Foundation

Website: www.communitysportsfoundation.org.uk

Phone: 01603 984 000

Helps others achieve their goals through sport, supporting some of the most disadvantaged, disabled and talented people across Norfolk.

Point-1

Website: www.ormiston.org/what-we-do/mental-health-and-wellbeing/

Email:  Point1@ormistonfamilies.org.uk

Phone: 0800 977 4077

Supports families in the East of England to build resilience and make choices to improve the life chances of their children.

Riding for the Disabled

Website: www.pakefieldridingschool.co.uk

Email: teresalaws@hotmail.com

Phone: 01502 572257

Actively promotes inclusivity and offers access to clients with wide range of additional needs.

Scope

Website: www.scope.org.uk

 

Email: helpline@scope.org.uk

 

Helpline: 0808 800 3333

We provide free, independent and impartial information and support on the issues that matter to disabled people and their families.

SENsational Families

Website: www.sensationalfamilies.org.uk

 

Provides support services and training for families with special educational needs and/or disabilities (SEND) in Norfolk.

Sensory Integration Education

Website: www.sensoryintegration.org.uk

 

Train those who work with and care for people with sensory challenges.

Sleep East

Website: www.sleepeast.com

 

Email: joybishop@sleepeast.co.uk or marianpearson@sleepeast.co.uk

 

Phone: 01692 402240

Sleep East provides sleep counselling and workshops/training for families of children with additional needs.

Shine Great Yarmouth

Website: www.shine-gy.org.uk

 

Email: info@shine-gy.org.uk

 

Phone: 01493 661000

 

Shine provides a range of services and activities for children and young people with additional needs or disabilities and their families.

Speech & Language Therapy

https://www.justonenorfolk.nhs.uk/salt

 

Children's Speech and Language Therapy (SALT) service provides assessment, advice and therapy for children and young people aged 0-19, with speech, language and communication needs in Norfolk and Waveney.

Suffolk County Council

Website: www.suffolk.gov.uk/children-families-and-learning

 

Suffolk Local Offer

Website: www.suffolklocaloffer.org.uk

 

Phone: 0345 606 1490

 

Information about support services and local opportunities for children and young people with SEND in Suffolk - find what you need all in one place.

Suffolk Parenting Group

Website: www.suffolk.gov.uk/children-families-and-learning/the-parent-hub/parenting-programmes/#tab4

 

 

List of parenting support programmes for parents and carers in Suffolk. The programmes bring experienced workers, parents and carers together to discuss issues,

share concerns,  gain practical advice and information.

Sunbeams Play

Website: www.sunbeamsplay.org.uk

 

Email: info@sunbeamsplay.org.uk

 

Phone: 01493 442181

Sunbeams Play provides safe and fun groups for children and young people with autism age 5 up to 25 years.

The Curly Hair Project

Website: www.thegirlwiththecurlyhair.co.uk

 

The Curly hair Project (CHP) is an award-winning social enterprise founded by autistic author and entrepreneur Alis Rowe. CHP resources are used by individuals, families and professionals worldwide.

 

The Parent Hub

https://www.suffolk.gov.uk/children-families-and-learning/childcare-information-and-support-for-parents-and-providers/parent-hub/

 

A single place for Suffolk parents or carers to find parenting advice and support to help their child's development.

Tiny Happy People

Website: www.bbc.co.uk/tiny-happy-people

 

 

Helps you develop your child’s communication skills through simple activities and play.

TOPCATS

Website: www.topcats.org.uk/about

 

Email: annemarie-topcats@outlook.com

 

 

 

Offers support for young people and adults with additional needs from the age of 5 years to 30 years old in Waveney.

Waveney Gymnastics Club

Website: www.waveneygymnastics.org

Email: waveneygym@aol.com

Phone:  01502 501419

Offers a variety of classes for youngsters through to adults including special needs sessions.

YMCA

Norfolk/

Suffolk

Website: www.ymcanorfolk.org

 

Email: info@ymcanorfolk.org

 

Phone: 01603 621263

 

Suffolk Website: www.ymcatrinitygroup.org.uk

Supports and enables young people in Norfolk to reach their full potential.

 

For young people in Waveney.

Young MINDS

 

Website: www.youngminds.org.uk

 

For Young People

Text the YoungMinds Crisis Messenger, for free 24/7 support across the UK if you are experiencing a mental health crisis.

Text YM to 85258

All texts are answered by trained volunteers, with support from experienced clinical supervisors

Texts are free from EE, O2, Vodafone, 3, Virgin Mobile, BT Mobile, GiffGaff, Tesco Mobile and Telecom Plus.

 

For Parents

Parents Helpline - call for free on 0808 802 5544

from 9:30am - 4pm, Monday - Friday.

Parents webchat – via website 9:30am - 4pm, Monday - Friday.

Parents Email service - 4pm - 9:30am, Monday - Friday and across the weekend.

Offers practical tips, information, support and advice for young people or for parents and carers who are concerned about their child’s mental health, up to the age of 25.

 

Understanding Autism, Asperger's & ADHD

Issuer: University of Derby

www.derby.ac.uk/short-courses-cpd/online/free-courses/understanding-autism-aspergers-and-adhd/

 

Free short online course

 

Useful FREE Apps

Kids ToDo List                                       

School Planner                                                               

My Study Life - school planning tool 

Remember the milk                           

Childrens Countdown Timer 

The Mindfulness App

Smiling mind

MyLife Meditation                             

Coloring Games: Coloring Book, Painting, Glow Draw

Autimo - Discover emotions

Molehill Mountain – self-help app for anxiety management, designed with input from autistic children and their families. Mainly suitable for older children and young people (roughly aged 10 and above).

Pod cast https://www.acamh.org/podcasts/eating-difficulties-autism-a-parents-guide-vicki-ford/