Condition specific resources
Within this section we would like to signpost you to resources about certain conditions that you may find helpful.
For other physiotherapy conditions and resources, including neonatal, baby, musculoskeletal and orthopaedic (bones, muscles and joint) conditions please click here.
Cerebral Palsy (CP)
Cerebralpalsy.org.uk provides support by offering impartial information on a broad range of subjects that people affected by CP should find useful;
Selective Dorsal Rhizotomy (SDR)
This leaflet provides information for families and carers who are considering SDR surgery;
Advice and support for families with children with hemiplegia;
Cerebral Palsy Integrated Pathway
This pathway is being developed across the UK to standardise and help improve care for children with Cerebral Palsy particularly with regard to their risk of developing musculoskeletal problems.
Please follow the link below to read about the development of this pathway;
Children usually attend these appointments with their physiotherapist once a year at the Newberry clinic. For more information please speak to your child’s physiotherapist or visit www.cpipuk.org/.
There are a number of charities that provide information, resources and support for families. These include;
Advice and information on a number of different conditions.
Muscular Dystrophy campaign
Bringing individuals, families and professionals together to fight muscle-wasting conditions.
Parent Project Muscular Dystrophy
Fighting to end Duchenne, through accelerating research, raising voices to impact policy, demanding optimal care and striving to ensure access to approved therapies.
European Neuromuscular Centre
Connecting people world-wide to make progress in the treatment of patients with Neuromuscular Disorders;
Campaign for Access to Treatments for Spinal Muscular Atrophy;
Spinal Muscular Atrophy UK
Providing support and information on Spinal Muscular Atrophy;
Charcot Marie Tooth UK
Dedicated to supporting people living with Charcot-Marie-Tooth disease
Myotonic Dystrophy support group
Friendship and support for those with Myotonic Dystrophy;