Condition specific resources

Within this section we would like to signpost you to resources about certain conditions that you may find helpful.

For other physiotherapy conditions and resources, including neonatal, baby, musculoskeletal and orthopaedic (bones, muscles and joint) conditions please click here.

Cerebral Palsy (CP)

Cerebralpalsy.org.uk provides support by offering impartial information on a broad range of subjects that people affected by CP should find useful;

https://www.cerebralpalsy.org.uk/

Selective Dorsal Rhizotomy (SDR)

This leaflet provides information for families and carers who are considering SDR surgery;

https://apcp.csp.org.uk/documents/parent-leaflet-selective-dorsal-rhizotomy-2020

Hemihelp

Advice and support for families with children with hemiplegia;

https://contact.org.uk/advice-and-support/health-medical-information/hemiplegia-support/

Cerebral Palsy Integrated Pathway

This pathway is being developed across the UK to standardise and help improve care for children with Cerebral Palsy particularly with regard to their risk of developing musculoskeletal problems.

Please follow the link below to read about the development of this pathway;

https://apcp.csp.org.uk/content/cerebral-palsy-integrated-pathway-developing-uk-wide-programme

Children usually attend these appointments with their physiotherapist once a year at the Newberry clinic. For more information please speak to your child’s physiotherapist or visit www.cpipuk.org/.

Neuromuscular Conditions

There are a number of charities that provide information, resources and support for families. These include;

Treat NMD

Advice and information on a number of different conditions.

https://treat-nmd.org/treat-nmd-diseases/

Muscular Dystrophy campaign

Bringing individuals, families and professionals together to fight muscle-wasting conditions.

https://www.musculardystrophyuk.org/

Parent Project Muscular Dystrophy

Fighting to end Duchenne, through accelerating research, raising voices to impact policy, demanding optimal care and striving to ensure access to approved therapies.

https://www.parentprojectmd.org/